For US Healthcare Professionals
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Tools and resources
Actor portrayal
Tools and resources
Professional resources
Professional resources
The following resources can help clinicians and patients find more information on primary hyperoxaluria.
American Kidney Fund
Nonprofit
Comprehensive programs of kidney health awareness, education, and prevention.
Genetics Home Reference
Mayo Clinic
Disease Education
Symptoms, causes, complications, diagnosis, treatment, patient registry
National Kidney Foundation
Voluntary Organization
Seeks to eliminate preventable kidney disease, accelerate innovation, and dismantle structural inequities in kidney care.
NORD: National Organization for Rare Disorders
Oxalosis & Hyperoxaluria Foundation
Disease Education
- General understanding of hyperoxaluria
- Drug development pipeline for new therapies
Sign up for patient registry OHF
Facebook Page for Patient Support Group
Rare Kidney Stone Consortium
Rare Renal
R.O.C.K. Society
Special Interest Society
Basic mechanisms involved in human urinary stone formation
Stay in the loop
Stay up to date with the latest news and information about primary hyperoxaluria.
Reference
- Mayo Clinic. Nephrology and hypertension: Hyperoxaluria Center overview. Accessed May 20, 2020. https://www.mayoclinic.org/departments-centers/hyperoxaluria-center/overview/ovc-20464981?p=1
